Thursday, January 28, 2010

Absorb and normalize

Ford made it through the procedure this afternoon and even looked surprisingly stable when we got back in to see him. They were successful in opening up his right jugular and putting in the 10mm stent, but were a little concerned with some anatomical narrowing there, which is pinching or kinking the stent a bit. Otherwise it appears to be working to keep the vein patent.

Ford woke up a few hours after coming back from the cath lab, but the experience was so uncomfortable for him they quickly sedated him again. However the sedation boluses triggered a drop in his blood pressure, sats, and heart rate to the point where we were once again surrounded by an anxious group of people -all eyes fixed on his monitor. Knowing Ford's "style" helped to alleviate some of the drama, and we even felt capable of passing the time tossing awkward, dark jokes back and forth while waiting for him to recover. Sometimes we forget and end up needing to remind ourselves that these people aren't our friends, despite the prolonged periods we all spend ostensibly hanging out together.

So we ended up with a strangely calm evening that somehow seemed to exacerbate this afternoon's emotional food-processor (I'm searching to replace the clichéd "roller coaster" metaphor with something less resonant of a pleasant summer afternoon that isn't "*&@#-fest" - suggestions would be appreciated). As I've said before, it's exhausting to be repeatedly walloped with life-and-death decisions that ultimately land us back in an uncomfortable middle ground mediated with an endless titration of mechanical and pharmaceutical supports. Yes, Ford is technically "ok" for the immediate future, but his long term shot at things is getting increasingly complicated.

If we can put aside the rhetoric of his toughness and strength, we're left with the doctor's reluctant admissions. Every time Ford endures a brush with death and manages to pull through it takes a toll on him that can't be measured with candied sentiment alone. Unfortunately for him both Christa and I feel completely incapable of making a choice that ends in resignation, with us carrying another baby out of the ICU into a back room to die in our arms. And with maniacs like us at the helm he's as likely to be driven to death as he is to life.

So come along onwards with us! As we absorb and normalize his accumulating handicaps and melt at his every smile.

8 comments:

  1. As usual with the hard news, there are no words. I start to write something, feel the enormous inadequacy of words in the face of this and stop. But I wanted to write anyways this time to say thank you for keeping us up to date even when it's such hard news. Remember that even when it's too hard to write a comment, witty, dark, loving, encouraging, sympathetic, etc, news of Ford lands with so many loving people. I am certain that we're all sending love and strength and our deepest, most heartfelt blessings.

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  2. I'm with Susan, and my heart is breaking......

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  3. We love you, we love Ford, and we are with you no matter where you go and how you get there.

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  4. I echo those above. Continue to make decisions from your hearts and those choices will be the right ones. Lots of blessings to the little guy- he remains our greatest teacher, and his teachings are all about caring, strength, courage and love.

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  5. Ditto, ditto to all of the above. Simply with you 100% on this Fording journey.
    An alternate term that comes to mind is "sea-sick".

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  6. Come along onwards with you? Of course I will! How could I not? Rhetorical question only, of course, as I'm sure that it's overload long since on immediate and practical questions, Christa and Nick--Ford too, in some (to me anyhow; to you three, maybe not so much) inimitable and inscrutable way. There's a necessary limit to my understanding of where you are and what you know and feel; but there's no such limit to my love and concern for you all, and they go out to you unceasingly. May they do their little bit to keep sustaining you in crises and in awful limbo, and be near enough by to reflect back and thus amplify the warm light of any sunshiny moments. I don't think it matters how long or short those moments have been, how peaceful and serene or raucous and riotous; it just matters that they were, and are, and can yet be. I'm wishing you at least your fair share, in willful defiance of an apparently unjust or uncaring universe; I'm also sending you strength, and adding another echoing voice to all the comments before this one.

    Oh, and about your search for a change of metaphor: for the time being I'll go with you on "food processor," as it has more cachet than "blender," but similar implications of overwhelmingly circular or spiral speed and the relentless push and pull of centripetal and centrifugal forces, from the point of view of the hapless contents, that is.

    Please take care, immersed as you are in the need to give so much care. Love and more love.

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  7. Great comments - great friends!
    I am in just amazement of ......WHAT did Toronto do and why did they not see all this and Ford did so well????? Just a matter of time?
    Crazy - no wonder you both feel you have been through the "food processor"...or some other processor!!!!!

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