Over the weekend Ford had trended into what looked like a solid recovery from his post-MRI crash, so much so that by Sunday he seemed to be almost back to his chipper self - as evidenced by the following video:
We thought we should clarify that the episode he experienced after his MRI was not technically caused by the scan itself. It was a response to being handled, transported, sedated, and muscle relaxed, all of which needed to happen for the test to proceed smoothly, once again illuminating that beautiful catch-22 of the hospital. But I feel like attributing part of it, proudly, to our son's blossoming personality. Obviously he seems to like it best when he's comfortably nestled in his crib, left to laze about, suck on his sponge and ogle the nurses. But so much so that he has developed a ferocious will-to-leisure (props to his dear old dad), and he becomes so furiously indignant when nurses and doctors start to futz over him that he works himself up into dangerous tantrums. He starts fighting off their attempts to calm him down and, though it usually subsides quickly and harmlessly, occasionally gives us a run for our money. It would be funny to watch if it wasn't so damn scary. I have started to affectionately refer to him as my "little World Cup star" for his flamboyant displays of crocodile tears.
Nevertheless, his chest tube continued to drain the accumulated fluid in his pleural cavity and we assumed he was getting off the rocky road.
But early Monday morning we woke up to a call from the hospital letting us know that Ford's sats and blood pressure were dropping again and they had intervened with an infusion of Dopamine, which had so far helped to level him off. By the time we arrived at his bed he had started to deteriorate even more and they were systematically upping his supports. The rounding doctors decided he was exhibiting symptoms of septic shock and ordered a round of tests to find out for sure. They quickly started him on broad spectrum antibiotics, with the usual hope that by the time they got the results of the tests back they would already be well into treating the bug, and continued to deal with his faltering vitals - occasionally tossing us the oh-so-helpful "lets hope a heart comes soon" line.
As the day wore on he received several boluses of albumin (a blood product that helps raise pressure by increasing the volume of fluid in his veins), a full on blood transfusion to thicken his blood and combat his low hemoglobin (which helps raise his O2 saturation), additional infusions of Epinephrine and Vasopression (both of which constrict blood vessels and raise blood pressure), doses of some kind of corticosteroid (for exactly what I'm not too sure, but it did produce extremely dilated pupils, or "steroid eyes"), and arterial IV line (to get a constant measure of his fluctuating pressure), an ultrasound of his abdomen (which is extremely swollen and distended), several bags of ice packed tightly around his body (to combat soaring temperatures), and most importantly a near constant barrage of bum pats and head rubs for our poor, writhing baby, who spent the whole day shifting himself around his bed in obvious discomfort.
By the end of the day they had him stable enough to start pulling back on his inotropic support and Ford finally fell into some sort of exhausted sleep-like state. Christa, who had spent around 16 hours at his bedside that day, decided to call it a night and we too collapsed into our own exhausted sleep-like state, miles away from the hospital in our lonely mid-town pad.
Today was a little better, Ford even had the gall to smile at me when I got there in the morning - prompting the necessary parent-child exchange: Is this all a joke to you!? Do you realize what you're putting us through? Wipe that grin off your face! There were ups and downs. Ford quickly relapsed into his uncomfortable twisting and fussing, was tightly refusing any attempts to feed him a water soaked sponge (usually his favourite thing), but was again looking relatively OK by the end of the day. None of the tests they sent off have yet come back positive for any kind of blood infection, but they are still holding firm to the septic diagnosis.
Hopefully this too shall pass.
I feel like we're starting to wear that idiom a bit thin...
Tuesday, April 20, 2010
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Oh you guys. I sit in my office down the street from the hospital and have nothing to say except that you are the most extraordinarily dedicated and wonderful parents to this little man and that he has captured my heart with his ferocity and sass (which he obviously comes by honestly!) I carry hope in my heart for his.
ReplyDeleteI echo Susan's eloquent comments....(except I sit in my computer room, 1000's of miles away, in the little village of Lumby,BC)
ReplyDeleteI watched the video of your sweet wee man repeatedly and have fallen head over heels for him.
Thank you for all your pure insights into true love.
Can he be more adorable? Lovely video again. May all the love smooth out the rough, rocky, winding road. Hope in all our hearts - to echo Susan and Cindy too. Be well sweet Ford.
ReplyDeleteFord, stop scaring your parents like that!
ReplyDeleteBut my, you are so very, very cute!
It's so good to see him up and puttering around, even though I know it's not how he is all the time. Be good Ford! We're all thinking of you.
Ditto-ing all the thoughts, hopes--and okay, even the chidings--above. Heaping on the love, too, of course!
ReplyDeleteIt has occurred to me that the expression you've said is wearing a little thin: "T... t.. s.... p...," (I'll spare you the complete spell-out) must be made of kryptonite, because there seems to be no wearing it out. Gotta be "grammatical kryptionite" that is. As far as I can figure, it's all in the word "shall," which is guaranteed stronger than "will" for everyone and everything other than "I, we, and you." If if weren't, then motions in meetings and sentences in court wouldn't be "shall'd" all the time.
THERE! Now that you've been lulled into a state of complete stupefaction, slide on into a relaxing, uneventful weekend--with only enough family "sass" to keep you three in tuneful touch, but definitely not so much as to disturb any of your leisure. I really hope those fevers are backing off a bit. Hugs!!!
P.S. I hope your achingly distant digs are still only a short transit trip (or car ride, if you're renting one) from Ford's, Christa and Nick; also that your neighbours are cool with any singing, guitar-playing, or other artistry you want to practice and enjoy when you're "in." Thinking of you lots.
Yes - we are all thinking of u-3!
ReplyDeleteWhat a little fighter! Good for you Ford!
A sponge of water - how clever! I thought - a sucker!!!!??? Wow! His sucking reflex has obviously returned - that is great!
Hang in there - you two are such FABULOUS parents!!!!! BIG HUGS TO ALL 3!