potential countdown begins and blue is for boys

a third post in as many days after a week of quiet - we're so busy suddenly!

Dr. Human seemed reserved at rounds this morning, but he was pleased that Ford has gone along with plan A (to remain stable and not need more/new meds and/or aortic patch surgery) and said he'd look at having the Glen done in "about 10 days". 10 days exactly is september 18th. we'll wait and see what they firm up.

i'm excited to think of Ford moving forward with this whole 3 stage modification business, but scared too of seeing him, specifically his sternum, cut open again. i'd say the thought breaks my heart, but it's his heart that's going to have the real tinkering. my sweetpea!

in the mean time Dr. Kat, the senior pediatric resident of wee stature and thick eyebrows, who we like, asked if, since he is doing so well, might we be able to take him home for a week before the surgery.

what?

after wishing so much that we could take him home the suggestion surprised me. yes i want him home, but he's SAFE here. wide-eyed i said "i was thinking we could just go out for the afternoon!" and Dr. Human agreed "let's start with that".

so Dr. Sarah, junior resident of great height and thick ankles, who's growing on me, is on the trail of a portable feeding pump, as he'd need to stay on continuous feeds. as long we choose a time in between major med admins (which are 8am and 8pm - a wide window) we can take him out on the town some time soon!

which makes my sudden installation of the car seat on saturday worthwhile. i was in a state of wanting things to be different - though knew putting it in could just serve as a disappointing reminder, i thought it could also maybe be a statement of hope. i'm glad now that the car is ready to go, as soon as Ford is too.

where will he first outing be? i don't think i could take him home. the thought makes me sad. but to the ocean on these last summer days perhaps... or lunch with friends? or maybe to nick's show on thursday! the world is our, limited to a few hours, oyster.

yesterday, we enjoyed another walk around the hospital. on his own, Ford doesn't look so pale, but looking at this after it is evident that he is a little blue!
what a mixed-blood cutie!